In the News
Keep up to date with the latest news articles from around the world.
Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.
05 May, 2024
Scientists Identify New Brain Circuit In Mice That Controls Body's Inflammatory Reactions
The brain can direct the immune system to an unexpected degree, capable of detecting, ramping up and tamping down inflammation, shows a new study in mice from researchers at Columbia's Zuckerman Institute.
05 May, 2024
Jaime Seltzer – Postviral Patient Advocate
For years, U.S. medical schools barely taught their students about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a chronic condition that affects up to 2.5 million people in the U.S., which can develop after routine viral illnesses and causes debilitating exhaustion. Jaime Seltzer—a trained scientist who developed ME/CFS in 2014 and now works as the scientific director for the advocacy group #MEAction—is working to change that.
05 May, 2024
ME/CFS And Long COVID Experts Crash Time’s List Of 100 Most Influential Health Leaders: It’s Another ME/CFS Moment
Time magazine has been publishing its list of Top 100 most influential people on the planet for over 20 years. Four years ago it added Health and other other categories to the list. Time said it spent months consulting sources and experts around the world to select the 100 most influential individuals in the world of health right now. One would expect to see pioneers in cancer, heart disease, dengue fever, and Alzheimer’s pick up awards, and they do. These are diseases that are well entrenched in the medical infrastructure. Then there are the outsiders. Long COVID is still a baby in the medical research field and chronic fatigue syndrome (ME/CFS) could probably get an award for the most well-known but least well-funded disease on the planet. Long COVID and ME/CFS awardees, though, didn’t just crack the Top 100 – people associated with them made up about 5% of the awardees. That was a surprise and it makes the TIME100 Most Influential People in Health in 2024 awards an easy ME/CFS and long-COVID moment; i.e. a sign that things are turning for the better for both these diseases.
04 May, 2024
Science Friday: May 3, 2024
Science Friday is live from Ames, Iowa, home to prairies, greater prairie chickens, and an array of wildlife. Plus, the co-emergence of two periodical cicada broods is underway. Scientists have tips for how to experience the event. And, as the “Universe of Art” podcast turns one, listeners discuss solar music boxes and what it’s like making art with Chronic Fatigue Syndrome.
04 May, 2024
Australia’s State And Services Are Trapping A Woman Living With Severe ME/CFS In Domestic Abuse
A woman living with severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australia is desperately appealing for help to leave an abusive household. The neglect and abuse the Australian state, healthcare system, disability, and domestic violence support services have routinely subjected her to has created a perfect storm – trapping her in this indefensible situation. Her appalling and increasingly life-threatening circumstances underscores the systemic failure of services and support for both ME/CFS and domestic violence.
04 May, 2024
Well-Being Coach Living With Chronic Illness To Host Book Event
A UK well-being and creativity coach who is living with a condition which causes widespread pain and extreme tiredness is hosting an event to help others in similar positions. Amanda Mckinley has self-published her first book after being diagnosed with Fibromyalgia 15 years ago. The promotional event will take place on May 11 in Paisley Central Library - the day before National Fibromyalgia Awareness Day. It will feature her book ‘How I Became a Butterfly - Creative Tools for Coping with Life and Chronic Illness’ as a tool for raising awareness and understanding.
03 May, 2024
Unveiling The Link: Exploring Muscle Oxygen Saturation In Fibromyalgia And Its Implications For Symptomatology And Therapeutic Strategies
A study published in Medical Gas Research.
03 May, 2024
How Telehealth Companies Approach Treating Complex, Chronic Diseases
Telehealth companies are trying to bring virtual care to patients with challenging, hard-to-diagnose chronic conditions like long-term COVID, myalgic encephalomyelitis/chronic fatigue syndrome, and postural orthostatic tachycardia syndrome, or POTS, a condition that results in an elevated heart rate, dizziness and fatigue upon standing up. Here & Now's Deepa Fernandes speaks with STAT's chronic disease reporter Isabella Cueto for a deeper dive into how telehealth startups find opportunity in long-ignored chronic diseases.
02 May, 2024
Long COVID: Millions Have It. Why Do We Still Know So Little?
The CDC estimates 17 million Americans experience long COVID. What have patients and doctors learned about the mysterious illness?
02 May, 2024
Looking at the causes behind mobility issues
Dr Keith Roach, MD, writes in US publication the Durant Democrat: "Exercise helps the vast majority of people improve their mobility, but there are exceptions. Many people with myalgic encephalomyelitis/ chronic fatigue syndrome are intolerant of exercise, and overdoing it can lead their condition to worsen. This syndrome has also been known as systemic exertion intolerance disease. Well-meaning physicians, friends and family might have recommended exercise to a patient, which could have caused them to have a flare-up."
